"Tomos was an outdoor sort of bloke. He enjoyed time with his mates. But in 2019, Tomos started feeling dizzy. His condition deteriorated, and four years later he was diagnosed with severe ME after he began struggling to walk and could not tolerate noise or light."
"At his worst, their son looked 'paralysed'. He couldn't open his eyes, couldn't talk, couldn't move. They said they had tried to have carers at their home, but found that made Tomos worse."
"The problem with having severe ME is that you can't communicate. Because there's no real treatment for it at the moment, and there isn't a group of consultants that own the disease... people with ME are invisible."
Tomos Sleep, a 28-year-old, has been diagnosed with severe ME, rendering him unable to walk or talk. His parents, Myfanwy and Charlie, describe the heartbreaking impact of his condition, which began with dizziness in 2019. Despite attempts to find care, Tomos struggles with communication and interaction. The Welsh government is considering proposals for better support, but many with ME remain 'invisible' due to inadequate healthcare services. The condition is complex, causing extreme fatigue and other debilitating symptoms.
Read at www.bbc.com
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