#cystic-fibrosis tag

'Total thievery is what it is. An outrage when she's not here' - The Creep Dive podcast co-host Jen O'Dwyer on the death of her sister at just 16

Jen O'Dwyer channels her grief and experiences into her art and competitive rowing, emphasizing the importance of slowing down and being present.

fromwww.bbc.com

1 month ago

Battersea rescue dog to sniff out lung infection

He is full of personality, confidence and loves to use his nose, which are all attributes we look for in a Bio Detection Dog. He needs to be assertive enough to tell us when he has found his target odour and when it is not present and he will be rewarded for both decisions. He loves life at our training centre, where he gets dropped off for training in the morning and collected at the end of the day.

Medicine

Public health

fromwww.theguardian.com

2 months ago

We were sitting with our calculator saying we can afford that!' Joy for families as cystic fibrosis drug prices fall within reach

Generic manufacturer will offer Vertex's cystic fibrosis ETI therapy for as little as $2,000 a year, a 99.5% price reduction after parent-led campaigning.

Medicine

fromTruthout

2 months ago

The FDA's Lax Generic Drug Rules Can Put Patients' Lives at Risk

A double-lung transplant restored breathing but subsequent severe respiratory decline raised concerns about post-transplant complications and changes in immunosuppressive medication.

Philosophy

fromApaonline

3 months ago

Seasick in My Own Skin: Reflections on Chronic Disease

A cystic fibrosis diagnosis and potent medications produced severe physical side effects and forced a painful reassessment of identity and control.

Health

fromNews Center

7 months ago

New Wireless Sweat Patch May Improve Cystic Fibrosis Treatment - News Center

A new wearable device accurately measures biomarkers in sweat to enhance clinical decision-making for cystic fibrosis.

fromwww.dw.com

8 months ago

Libya's broken healthcare system drives locals to migrate DW 07/06/2025

For the past seven years, Sohan's family has paid for private lab tests in neighboring Tunisia and ordered medication through private pharmacies. Without this medication, Sohan would not have been able to survive until today.

Public health

NYC politics

fromThe Nation

10 months ago

Inside the Bloodbath at the NIH

Trikafta's development exemplifies successful collaboration in American biomedical research between public and private sectors, transforming cystic fibrosis treatment.

The rapid FDA approval of Trikafta significantly improved treatment options for children with cystic fibrosis.

#julian-benson

fromIrish Independent

11 months ago