#epidermolysis-bullosa

#epidermolysis-bullosa

Introducing Filsuvez is a promising start, as it can offer temporary pain relief, and we hope it will mark the beginning for the treatment of EB in Ireland.

Epidermolysis Bullosa is a rare, life-threatening genetic skin disorder that mostly affects children. The condition causes fragile, blistering skin, and those who have it are sometimes called "butterfly children" as their skin is considered as fragile and easy-to-break as a butterfly's wing. People born with EB lack critical proteins that bind the skin's two layers together. Without these proteins, the skin tears apart easily, leading to severe pain, disfigurement, and internal and external wounds.

Epidermolysis bullosa (EB) affects the skin's ability to withstand friction and trauma, causing painful blisters and sores that can limit mobility and quality of life.