#chronic-illness
#chronic-illness

US politics

By Refusing to Surrender Our Humanity, We Are Still Able to Fight Back

Artificial intelligence

fromFast Company

4 days ago

AI has a resilience problem. Designers and researchers can help fix it

Technology often fails to address the unpredictable realities of life, particularly for those with chronic conditions.

fromTruthout

US politics

By Refusing to Surrender Our Humanity, We Are Still Able to Fight Back

more#healthcare

#crohns-disease

London food

A moment that changed me: Crohn's left me in constant pain. An operation restored my appetite for life

Food was a source of joy until Crohn's disease drastically changed that experience.

fromIndependent

Cancer

'Crohn's disease forced me to give up my dream job' - patient reveals daily struggle of living with debilitating and incurable illness

fromConde Nast Traveler

Travel

Why South Africa Is the Best Country to Visit If You Have Digestive Issues

London food

A moment that changed me: Crohn's left me in constant pain. An operation restored my appetite for life

Food was a source of joy until Crohn's disease drastically changed that experience.

fromIndependent

Cancer

'Crohn's disease forced me to give up my dream job' - patient reveals daily struggle of living with debilitating and incurable illness

fromConde Nast Traveler

Travel

Why South Africa Is the Best Country to Visit If You Have Digestive Issues

more#crohns-disease

fromTheartnewspaper

Steamy scenes in urban underworlds were Edward Burra's great subject-now they're coming to Tate Britain

Burra's unique eye ranged across the louche underbelly of city life, conceived stage and costume designs, and later brought a malevolent energy to empty, brooding landscapes.

Arts

You went to the doctor and came out feeling worse - Harvard Gazette

Medical gaslighting often stems from doctors' pressures, leading to patient feelings of dismissal regarding hard-to-detect conditions.

Alternative medicine

The Negative Consequences of Invalidating Patients' Symptoms

Dismissal of symptoms by clinicians can cause real harm, including worsening conditions and loss of trust.

fromHarvard Gazette

You went to the doctor and came out feeling worse - Harvard Gazette

Medical gaslighting often stems from doctors' pressures, leading to patient feelings of dismissal regarding hard-to-detect conditions.

Alternative medicine

The Negative Consequences of Invalidating Patients' Symptoms

Dismissal of symptoms by clinicians can cause real harm, including worsening conditions and loss of trust.

more#medical-gaslighting

#robert-f-kennedy-jr

US news

RFK Jr's Maha' report found to contain citations to nonexistent studies

Kennedy's health report cites nonexistent studies, undermining its credibility.

The report misrepresents existing research, raising concerns about its accuracy.

Criticism of major medical journals highlights Kennedy's skepticism toward established science.

Attempts to restrict government scientists' publication raises ethical questions.

fromwww.nytimes.com

Mental health

Opinion | A Veneer of Official Medical Knowledge': Three Opinion Writers on Kennedy's Tenure

US news

RFK Jr's Maha' report found to contain citations to nonexistent studies

Kennedy's health report cites nonexistent studies, undermining its credibility.

The report misrepresents existing research, raising concerns about its accuracy.

Criticism of major medical journals highlights Kennedy's skepticism toward established science.

Attempts to restrict government scientists' publication raises ethical questions.

fromwww.nytimes.com

Mental health

Opinion | A Veneer of Official Medical Knowledge': Three Opinion Writers on Kennedy's Tenure

more#robert-f-kennedy-jr

Do Social Media Trends Glamorize Chronic Illness?

Bed rotting trivializes the serious realities of chronic illness and conflates chosen rest with the medically necessary rest experienced by many.

While rest is important, social media trends may obscure the distinction between self-care and the need for professional health interventions.

fromNew York Post

Exclusive | Sports Illustrated Swimsuit model reveals how breast surgery was great for her health

It was never a cosmetic thing for me. My goal was not to get a breast reduction to be smaller or to lose weight.

Remodel

#childrens-health

fromtime.com

Public health

What the New Make America Healthy Again' Report Says About Children's Health

4 weeks ago

Parenting

Tips for Families Dealing With Chronic Illness in Children

fromtime.com

Public health

What the New Make America Healthy Again' Report Says About Children's Health

4 weeks ago

Parenting

Tips for Families Dealing With Chronic Illness in Children

more#childrens-health

The Window of Tolerance and Chronic Illness

Understanding the Window of Tolerance helps individuals manage emotions, especially during chronic illness.

Emotional regulation allows people to bring themselves back within their Window of Tolerance.

Gut Feelings... of Anxiety?

There is a significant relationship between inflammatory bowel disease and panic disorder, highlighting the mental health struggles faced by patients.

When Your Mind and Body Speak Different Languages

The connection between mental and physical health is crucial in understanding complex symptoms and illness.

From Chasing the Mental Disorder to Meeting the Person

Improving physical health can positively impact mental health.

Health practitioners are increasingly acknowledging the interdependence of mental and physical health.

Finding a sympathetic provider for mental health can be challenging.

When I Don't Recognize Myself and My Body

Personal experiences with chronic illness can lead to profound disconnection from self, reflecting findings in stress and depersonalization research.

The Link Between Loneliness and Chronic Illness

Loneliness significantly impacts those with chronic illness, often seen as an intertwining of individual and societal factors.

The Window of Tolerance and Chronic Illness

Understanding the Window of Tolerance helps individuals manage emotions, especially during chronic illness.

Emotional regulation allows people to bring themselves back within their Window of Tolerance.

Gut Feelings... of Anxiety?

There is a significant relationship between inflammatory bowel disease and panic disorder, highlighting the mental health struggles faced by patients.

When Your Mind and Body Speak Different Languages

The connection between mental and physical health is crucial in understanding complex symptoms and illness.

From Chasing the Mental Disorder to Meeting the Person

Improving physical health can positively impact mental health.

Health practitioners are increasingly acknowledging the interdependence of mental and physical health.

Finding a sympathetic provider for mental health can be challenging.

When I Don't Recognize Myself and My Body

Personal experiences with chronic illness can lead to profound disconnection from self, reflecting findings in stress and depersonalization research.

fromwww.scientificamerican.com

The Link Between Loneliness and Chronic Illness

Loneliness significantly impacts those with chronic illness, often seen as an intertwining of individual and societal factors.

more#mental-health

#parenting

Parenting

Ways To Cope When Your Child Gets A Life-Altering Diagnosis

fromThe New Yorker

fromwww.scientificamerican.com

Parenting

Welcome to the Preschool Plague Years

Parenting

Ways To Cope When Your Child Gets A Life-Altering Diagnosis

fromThe New Yorker

Parenting

Welcome to the Preschool Plague Years

more#parenting

Mindfulness

Pathemata by Maggie Nelson review a writer's attempt to describe chronic pain

Pain is inexpressible and resists language, making communication about suffering profoundly challenging.

Women in technology

fromwww.bbc.com

'I lost my kidney to a silent assassin'

Endometriosis is often misdiagnosed; patients must advocate for themselves to find proper treatment.

OMG science

fromCbsnews

Southern Minnesota woman believed to be the only known person with unnamed genetic disorder

Iris Enriquez exemplifies resilience as the only known person with her unnamed genetic disorder, teaching those around her to value life and love.

#disability

Relationships

Dating With a Chronic Illness

fromwww.bbc.com

London politics

'I've been threatened over my Please Offer Me A Seat badge'

Relationships

Dating With a Chronic Illness

fromwww.bbc.com

London politics

'I've been threatened over my Please Offer Me A Seat badge'

Nearly 3 Million Rural Americans Can't Access Health Care and Reliable Internet

Rural Americans suffer from limited healthcare access and poor internet which adversely affects their health.

fromQNS

NYC parents

Op-ed: Predatory food marketing is fueling health disparities - New York must act - QNS

Digital life

fromTruthout

Nearly 3 Million Rural Americans Can't Access Health Care and Reliable Internet

Rural Americans suffer from limited healthcare access and poor internet which adversely affects their health.

fromQNS

NYC parents

Op-ed: Predatory food marketing is fueling health disparities - New York must act - QNS

more#health-disparities

#lupus

Writing

Flannery O'Connor at 100: should we still read her?

fromTiny Buddha

Writing

How Embracing What I Resisted Healed Me from Chronic Illness - Tiny Buddha

Writing

Flannery O'Connor at 100: should we still read her?

fromTiny Buddha

Writing

How Embracing What I Resisted Healed Me from Chronic Illness - Tiny Buddha

more#lupus

Experience: I'm allergic to nearly everything

I've been diagnosed with mast cell activation syndrome (MCAS), a rare and incurable condition, where my immune system triggers too frequently, causing severe allergic reactions.

Mental health

#long-covid

Coronavirus

We're losing decades of our life to this illness': long Covid patients on the fear of being forgotten

Long Covid can drastically alter one's life, with Rowan Brown detailing her struggles with various debilitating symptoms over 18 months.

fromwww.mercurynews.com

Q&A with a researcher fighting long COVID and searching for relief

Long COVID significantly impairs stamina; monitoring and pacing are crucial for managing fatigue.

fromkffhealthnews.org

Long-COVID patients are frustrated that federal research hasn't found new treatments

Long COVID affects millions, yet research and treatment advancements remain stagnant.

fromScienceDaily

Study tracks physical and cognitive impairments associated with long COVID

Many individuals with post-COVID-19 syndrome experience persistent symptoms for over two years without significant improvement.

Coronavirus

Long Covid is the pandemic's dark shadow. Why does no one in power in Britain want to talk about it? | Frances Ryan

Coronavirus

We're losing decades of our life to this illness': long Covid patients on the fear of being forgotten

Long Covid can drastically alter one's life, with Rowan Brown detailing her struggles with various debilitating symptoms over 18 months.

fromwww.mercurynews.com

Q&A with a researcher fighting long COVID and searching for relief

Long COVID significantly impairs stamina; monitoring and pacing are crucial for managing fatigue.

fromkffhealthnews.org

Long-COVID patients are frustrated that federal research hasn't found new treatments

Long COVID affects millions, yet research and treatment advancements remain stagnant.

fromScienceDaily

Study tracks physical and cognitive impairments associated with long COVID

Many individuals with post-COVID-19 syndrome experience persistent symptoms for over two years without significant improvement.

Coronavirus

Long Covid is the pandemic's dark shadow. Why does no one in power in Britain want to talk about it? | Frances Ryan

Is There Value in Asking "What If"?

Chronic illness shapes oneâs perspective, prompting reflections on lost time, possibilities, and the struggle to find meaning amidst uncertainty.

SF food

RFK Jr directs FDA to revise self-affirm' rule to improve food ingredient safety

Kennedy's directive aims to enhance food ingredient safety by revising self-affirmation rules for manufacturers.

Healthcare

fromBuzzFeed

20 American "Norms" That The Rest Of The World Finds Super Weird

Long-term illness can lead to severe financial strain, even for those who make prudent financial decisions.

Healthcare

fromFast Company

I decided to be open at work about my chronic illness. Here's what it taught me

Many employees with invisible conditions remain undisclosed due to fear of stigma.

Supportive workplace environments are essential for employees with invisible conditions.

Shock study reveals health effect caused by microplastics in WATER

Microplastics in water are linked to increased risks of physical and mental disabilities.

fromenglish.elpais.com

Medicine

Incorrect arm positioning can lead to false hypertension diagnoses: We make mistakes in measuring blood pressure more often than not'

Hypertension is a silent killer affecting billions, with significant mortality rates and inadequate awareness and control among those affected.

fromMail Online

Shock study reveals health effect caused by microplastics in WATER

Microplastics in water are linked to increased risks of physical and mental disabilities.

fromenglish.elpais.com

Medicine

Incorrect arm positioning can lead to false hypertension diagnoses: We make mistakes in measuring blood pressure more often than not'

Daily briefing: Scientists use AI to design life-like enzymes from scratch

Robert F. Kennedy Jr.'s focus on chronic illness and nutrition could undermine US public health by neglecting the importance of infectious disease research.

Digital life

fromwww.nytimes.com